• A Dying Boy Gets a New, Gene-Corrected Skin

    One year ago - By The Atlantic

    At the age of 7, Hassan had already seen more than his fair share of hardship. A week after he was born in Syria, a blister appeared on his back. The doctors there diagnosed him with a genetic disorder called epidermolysis bullosa, or EB, which leaves one's skin extremely fragile and prone to tearing. There was no cure, they said. When Hassan's family fled Bashar al-Assad's regime and moved to Germany as refugees, the doctors there said the same thing. Meanwhile, the blisters were getting bigger. In June 2015, Hassan was admitted to the burn unit of a children's hospital in Bochum...
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  • Stem Cell Gene Therapy Replaces Boy's Entire Epidermis

    Stem Cell Gene Therapy Replaces Boy's Entire Epidermis

    One year ago - By Medscape

    Ex vivo gene therapy of epidermal cells from a boy with junctional epidermolysis bullosa enabled grafts to completely replace his epidermis.
    Medscape Medical News
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  • Complete new skin from transgenic stem cells for boy with rare genetic disease

    One year ago - By News Medical

    Hassan, a then seven-year-old boy from Germany, in 2015, presented to the doctors with a rare skin disease called junctional epidermolysis bullosa or JEB. This condition leaves the skin thin and papery and easily breakable. It has been compared to “butterfly wings” because of their fragile nature.
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